This is Maycee's pee. I never thought I would be so excited for a kid to pee
Darcy holding Maycee's hand
This is during her heart scan
Darcy looking in on Maycee. This is as close as we can get to her most of the time.
Another long day in the NICU for us with Maycee. She is so wonderful and it is so hard for us to not be able to hold her. She actually does best when she is not stimulated by touch or sounds around her so we can only actually touch her a few times a day and even then it is very quickly.
Her medical update of the day is that she is still on the ventilator and a lot of different medications to keep her sedated along with helping to fight infection and controling her blood pressure, oxygen levels, and heart rate. Her lungs have shown improvement and are fully inflating again with the ventilator. Maycee's kidney had a scan today because they were worried she was not urinating all of the fluid they were putting in her. The scan appeared to be normal but will be re-done tomorrow sometime to be sure. A catheter was put in to drain her bladder and let me just say that I have no idea how she held it that long. They drained off a ton of urine. They have not yet determined what virus she has but are continuing to treat her with antibiotics that cover a broad range of things. It is quite common for newborns to show symptoms of being infected but not necessarily have anything. Until her cbc comes back within normal ranges they will continue to treat her as if she has a virus. Her biggest problem currently is Persistent Pulmonary Hypertension (PPHN). In the womb the blood vessels around the lungs are tight and small and after birth should relax and open. Maycee's have not yet relaxed so she is having trouble getting enough oxygen. What the doctors are trying to due is to get her blood pressure up higher to trick her body into pumping blood to the lungs as the path of least resistance. So far we have had very little luck in getting her blood pressure up to where we want it to be for more than just short periods of time. She has had two different scans of her heart and we consulted with the pediatric heart specialist. Her heart appears to be fine other than the PPHN.
Maycee is considered to be the sickest kid in the NICU right now but her doctors, nurses, and therapist have been wonderful and I know that we are getting the best care possible for her.
4 comments:
Darcy, my thoughts are with you all. All the Souter women are strong; she too will continue to find the strength to pull through this. I am thankful you have such a supportive family to help out. Carissa
Thoughts and prayers for your family!!
Hey guys...thanks for the update. Sounds like things are in a holding pattern for you right now and sometimes the anticipation is actually worse than the problem!! Hope you get some answers soon about the infection and what is going on with your sweet Maycee so you can get a treatment plan in place and move forward!! It's wonderful you are able to be there with her and she is getting the best possible care. Big hugs!!
We are definitely praying for little Maycee. I love her dark hair and chubby cheeks. Can't wait to get her home so I can kiss them!
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