Here it is Sunday night and I haven't updated the blog for a while. Quite a lot has happened since our Friday post. First of all I am home in Soldotna with the kids while Darcy is still at the NICU with Maycee. It looks like it will be another week before Darcy and Maycee get to come home so I had to get back to work to try to start paying for some of these medical bills. Darcy was able to move onto a parent room at the NICU so we feel very blessed to have that happen. They only have six parent rooms and they only come available when someone takes their child home. We had been trying to get one for a while to help with Darcy trying to breast feed Maycee but it really is luck of the draw so to speak. Now Darcy is living in the same general area as Maycee although not the same room. Maycee's room is basically next door where her doctors and nurses have access to her around the clock.
Maycee has started to do better on her feedings but is still having to take a portion of her food through a feeding tube. She is up to eating 61 ml every 3 hours which equates to about 2 ounces per feeding. She is still on the vapotherm which is her pressurized air but the oxygen is down to 21% which is the same as the air we all breath so she just needs it to help her to get good full breaths. They started her out at 6 on the pressure when they removed her breathing tube and late today they got down to 2. Typically they reduce the pressure by 1 every other day. All in all she is doing well and baring any relapse should be able to come home possibly next weekend.
Darcy has the camera with her to get more photos that we will post later since I had to take the computer with me for work stuff.
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